All selected published abstracts were read and rated independently by three of the five members of the project literature review working group, thereby ensuring inter-rater reliability through consensus and minimization of bias [ 6]. Administrative - Patient involvement was seen as inconvenient and time-consuming interrupting the smooth operation of a hierarchical, bureaucratic organization, especially if there was little or no knowledge about practices of involvement. Through this process, additional articles were rejected, reaching a final number of 74 to be analysed.

Integrated engagement of all stakeholders would help to create learning organizations where patients, families, staff and leaders build collaborative relationships which helped to shift the culture. Raising a family is a hard task and in a world that is vying for our kids attention it takes faith in our homes, church community and resources. Although the literature identified a variety of patient engagement toolkits and guides (Table 2 – A. The selected relevant literature within this scoping review contributed to one or more clustered areas as tools/resources/approaches, education, and support/infrastructure for each of the identified user groups – patients, providers, leaders and AHS Patient Engagement Department. NHS Milton Keynes and Centre for Evidence-based Medicine: Public and Patient Engagement Getting it Right.With synthesis of the literature, the sub-themes and information within each of the seven themes were clustered into three main groups more in line with the expected content for a patient engagement resource kit – tools, education and infrastructure. Teams have described how boards have been affected by hearing clinical leaders who have used the PFCC approach describing what they had learned from listening to families, hearing what matters to them, and how care can be improved as a result of listening.

The literature depicted a large diversity of terms and definitions [ 8], tools and approaches to patient engagement in different settings, contexts, and purposes (Tables 2 and 3), and barriers and benefits to consider (Table 4). This excellent book covers the broad range of issues, is very readable and works really well as a one book resource for family ministry. One adaptation of the IAP2 model was found in Health Canada’s Policy Toolkit for Public Involvement in Decision Making using communication (inform or educate), listening (gather information), consulting (discuss), engaging and partnering [ 14].

The challenge for healthcare institutions is to locate or develop, and implement the mechanisms, tools and resources essential for preparing and supporting patients, their families, healthcare providers and healthcare administrators to effectively and successfully practice patient engagement. From an evaluation point of view, Coulter and Ellins conducted a review of the literature for evidence on patient focused quality interventions identifying that while the results of most reviews were positive (beneficial effect), “choosing appropriate criteria to evaluate patient focused interventions is difficult…and the lack of standardized outcome measures hampers comparison of results” [ 59], p.

Legal - In general, although a high level of individual patient rights existed regarding healthcare, there was a gap when it came to ‘patient involvement’ as a right.

Resources - There were two key aspects: a) the added value of patient involvement had not been quantified in economic terms and, thus had not been adequately compensated and b) meaningful patient involvement required resources. Not everyone will appreciate some of the rubrics for worship — ‘Cover a table with some coarse cloth, such as hessian. Coyle J, Williams B: Valuing people as individuals: development of an instrument through a survey of person-centredness in secondary care.