The Neuroscientist Who Lost Her Mind: My Tale of Madness and Recovery

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The Neuroscientist Who Lost Her Mind: My Tale of Madness and Recovery

The Neuroscientist Who Lost Her Mind: My Tale of Madness and Recovery

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And for two months in 2015, she developed similar symptoms of dementia and schizophrenia — only to learn they were the effects of cancerous tumors, growing in her brain. Lipska is very fortunate to have a husband, Mirek, who's a cool-headed mathematician; a son, Witek, who's a neuroscientist; a daughter, Kasia, who's a physician; and a sister, Maria, who's a physicist and chief of therapy in the radiation oncology department at Boston's 'Brigham and Women's Hospital.' She wrote like a scientist, almost giving itineraries instead of building a story. When she tried to build a story I knew what she was eluding to well before she gave the reason for the story. Throwing in some visual stuff or smells because that is what writers do, felt forced. Barbara Lipska was born, raised, and educated in Poland before she immigrated to the United States in 1989 to do post-doctoral studies at Maryland's 'National Institute of Mental Health' (NIMH). In 2013 Lipska became 'Director of the Human Brain Collection Core' at NIMH, which secures post-mortem brains for research about the brain and behavior.

Lipska's family was disturbed and worried by the changes in her demeanor, but Barbara herself didn't realize anything was wrong - even when her conduct became increasingly bizarre. Examples of changes in Barbara's behavior during cancer treatment include: I am a neuroscientist. For my entire career, I have studied mental illness. My specialty is schizophrenia. In June 2015, without warning, my own mind took a strange and frightening turn. As a result of metastatic melanoma in my brain, I began a descent into mental illness that lasted about two months."—Barbara K. Lipska She is fortunate indeed to have a highly educated, loving, supportive family. To be a neuroscientist herself. To be living in the DC/Boston area where there are a plethora of outstanding doctors, hospitals, and immunotherapy trials. Her recovery is truly miraculous and her ability to reflect now on what it was like when her brain was filled with 18 tumors - remarkable.Lipska did recover, both from the cancer and the side effects, though she's aware the 'cure' might not last forever. Still, Barbara's at peace, and very grateful to her family - as well as the doctors and other medical professionals who treated her. She says "I'm feeling great, although I am not as powerful as I used to be — both in terms of my physical strengths and emotions. I went through so much. My brain was assaulted with drugs, with radiation. I lost my vision in the left eye.....I lost some balance. I am a little disoriented spatially, so I have sometimes trouble with maps and finding my places. But, you know what? I'm alive — and that's all that counts. And I'm happy!" After successful surgery to remove the raisin-sized cancerous growth that was bleeding, Lipska received targeted radiation to the other tumours. Only after this could such treatments as immunotherapy (which empowers the immune system to recognize and destroy cancer cells) and “targeted” therapy (aimed at specific molecules within cancer cells) be tried. In spite of an iron will and a high tolerance for pain and discomfort, Lipska confronted tumours that had minds of their own. They kept popping up “like weeds in a garden”. At one point, she had eighteen simultaneously. Many of us might not be able (or even want) to persist in the face of considerable suffering as Lipska did. However, she attributes at least some of her endurance to her long-time training and competing as a marathoner and tri-athlete. Lipska is still not out of the woods; however, the mostly new treatments she underwent have prolonged a life that she obviously values, even if that life continues to pose challenges.

A very good book written by multiple cancer survivor Barbara Lipska, who is such an accomplished lady. She is the head of the brain bank at NIMH (National Institute of M. H.) in and has studied the brain for over 30 years. Until one day hers seemingly went haywire and she had to go and get treated for melanoma in the brain. While she was being treated for it, it left her acting like she had some of the mental illnesses that she'd been studying all those decades. I applaud the author for sharing a story that must have been very hard to relive/write about. However, there were a couple issues that made it hard to enjoy this book. First, I think the book would have been much better with more collateral information from others (family, physicians, physical therapists she interacted with) about all these different episodes during which the author was acting bizarre. It was hard to trust the author as the narrator of these stories because she's, well, literally brain-damaged. In addition to the deficits, her personality changed to being moody, bad-tempered and intolerant but given all she went through, how much of that was a product of the tumours altering her brain and how much the treatment and how much the stress and pressure of living through a second bout of cancer (she had previously had breast cancer and her first husband had died of the same type of cancer, melanoma, she had)?

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AMANDA RIPLEY, New York Times bestselling author of The Smartest Kids in the World and The Unthinkable This is one strong lady used to being in charge and when her brain started acting off, her family really didn't know how to react, and she didn't realize it's happening, so it's a real mess for a while because no one wants to take the reins from her or tell her she's not in charge anymore.

Such suffering and myriads of days and weeks and months in offices, hospitals and with dozens of advocates and possible optimal medicine associations and paths. Amintirile pe termen lung sunt puse deoparte de creierele noastre și sunt păstrate în strânsă legătură cu trăiri emoționale, pentru că pot fi importante pentru supraviețuire. Informațiile stocate în memoria pe termen scurt sunt mai degrabă evenimente temporare care așteaptă să fie categorizate și evaluate. Dacă sunt importante, vor fi stocate. Dacă nu, nu primesc validarea pentru a fi reținute și se pierd." This woman was a Polish immigrant and of the highest intellect. She ran her own brain study clinic, which makes what happened to her all the more ironic. She was a strong athlete and excelled at several activities. She cooked dinner every night for her family. But she lost all of that and more when she developed brain tumors. Her harrowing tale of treatment and recovery is told in this book. I'm very thankful to them, all of them, for this. You could say, this is what family's for, but I never expected to try them in this way. And I hope it will never happen again — that's my biggest worry. Within months after her surgery, Lipska felt good enough to go skiing with her family and to resume her regular triathlon training, which includes swimming, cycling, and running.A vibrant mental health expert’s bout with brain cancer and the revolutionary treatments that saved her life. I made short work of this one. Was totally absorbed in her story. I find anything to do with the mind fascinating. It can be our best friend or our worst enemy. Yet, so little is known about this miraculous organ, the control center of what makes us who we are. The author is the head of the NIH, studying the brains of those with mental deficits, among them schitzophrenia. She had besten cancer twice, was an avid marathon and triathlon partcipant, when she found out she had a melanoma that had spread to her brain. Despite the many years studying the brains, she didn't recognize her own symptoms, but she was in for the fight of her life. Lipska's expertise helped her understand her symptoms when she developed metastatic brain cancer in 2015, at the age of 63. Lipska - who had previously been treated for breast cancer and melanoma (skin cancer) - realized something was wrong when she was preparing for 2015's 'Winter Conference on Brain Research' in Montana. Reaching out to turn on her computer, Lipska noticed that her hand 'disappeared' when she moved it to the right and 'reappeared' when she moved it to the left. Very rarely do I get upset at anything I read. I did for some judgments made on this book by other reviewers. I wish I had not read them at all. Somehow I want to believe that people can be non-judgmental, tolerant. And see more than a class or an identity or ethnicity or a skin color.

It made for a detached read. Her access to medical facilities that most people in the world would never have access to and the way she expected that access was revolting, and she could not believe she had to wait for things. A whole hour in a waiting room! We have these thoughts about behaving properly — not yelling at our families and the loved ones. But I lost it. And I didn't realize it. And that's not even the worst part. OK, you enter a clinical trial because you believe it will benefit you. Clinical trials are meticulously designed and exclusion criteria exist in part to empower a specific intended analysis. By entering the trial under false circumstances, you are jeopardizing the results and potentially the possibility of this drug getting to market. When you had your brain swelling, that very serious adverse event is thoroughly reported. When reviewed by the FDA, such a serious side effect may cause them to decide not to proceed with further trials of this drug. You are potentially sabotaging the release of this drug, and its potential benefit to many patients, by falsifying your information. Also, just considering local consequences, you could have taken the clinical trial spot for someone who could have actually benefitted from it. I mean, I get it, the author was desperate at this point, eager for anything that would help. But, bottom line, it was a very selfish decision. Primul soț al autoarei s-a îmbolnăvit de melanom, o formă de cancer care avea o rată de supraviețuire de doar câteva luni (la acea vreme). La scurt timp, căsnicia celor doi s-a răcit. De ce? Păi, cică omul trăia în negare, adică nu îi venea să creadă că va muri și s-a închis în el. Probabil trebuia să îi ducă flori, când venea de la chimioterapie. Așa că autoarea l-a înșelat. Nici măcar nu a avut decența de a se despărți de el înainte să se culce cu altul. Peste ani, s-a îmbolnăvit și ea de aceeași formă de cancer. Atât de scârbită am fost de atitudinea ei, încât i-am numit boala ,,karma".The author was not mad, she had deficits more in line with loss of function rather than the peculiar function that comes from psychosis where people are operating from a different frame of reference. Her speciality is schizophrenia but I just couldn't see that she became anything like that or at least not like any I have known or whose books I have read. refusing to seek help for lymphedema (swelling) in her arm, then yelling at the therapist and storming out when she finally went for treatment. Creierul ne fascinează cu complexitatea lui și cu misterele pe care le ascunde. Tot ce visăm, credem, simțim și facem - tot ceea ce ne face oameni - vine de la emisferele cerebrale. Noi suntem creierul nostru. Este înspăimântător ca mintea să nu mai funcționeze din cauza bolii sau a îmbătrânirii și să pierdem ce ne este mai drag: persoana noastră.''



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