Finding the Light in Dementia:: A Guide for Families, Friends and Caregivers

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Finding the Light in Dementia:: A Guide for Families, Friends and Caregivers

Finding the Light in Dementia:: A Guide for Families, Friends and Caregivers

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When managing a Care Home, she has supported their transition from home to residential care using life stories as a guide to planning their life & care throughout their remaining years. Burholt, V., Davies, J., Boyd, M., Mullins, J.M., Shoemark, E.Z. and Centre for Ageing, Dementia Research, Expert Review Group on Continence, Dementia, 2020. A research agenda for promoting continence for people living with dementia in the community: Recommendations based on a critical review and expert‐by‐experience opinion. Journal of Clinical Nursing. Use the box(es) to help stimulate and engage your care partner and leave them in key places on your home. Trainees will be able to understand how dementia may affect people and learn how to communicate and connect with them, how to help bring them joy while undertaking personal care, and so much more. There are quotes from people with dementia and others, which provide relevancy and break up the chapters. I found it easy to read and absorb.’ ‘It is very easy to read, with lots of advice about everyday practicalities,’ says Janet.

Caroline likes the way the book is structured. ‘The use of bullet points at the end of each chapter and the space for notes means a carer could jot down thoughts and consult it regularly. Created by a dementia nurse specialist with over 30 years dementia nursing and research experience plus lecturing in health and social care and professional development. Includes masterclasses with leading professionals and researchers in the field – To share up to date knowledge, best practice and evidence based to positively impact practice. It’s absolutely amazing, I think it should be compulsory reading for everybody at the start of dementia. I wish it had been around when my husband started developing it.” -- Elizabeth Cox, Wife and Caregiver Meghani, N.A.A.,Hudson, J., Stratton, G, and Mullins, J., 2023. Optimising older adults’ home spaces to enhance their physical activity level; an explorative qualitative study protocol. BMJ (Open), 13(2), p.e066940.Whether you’re a family caregiver, health and social care professional, volunteer or member of the public who wants to understand more about Alzheimer’s disease and other dementias, Finding the Light in Dementia can help you.

Marilyn Shipp, in Kent, was wary of drawing conclusions too soon about a book that gave her so much to think about. ‘There are so many sensible and helpful pieces of advice and ideas, it all needs time to digest and take on board!’ There may be more books than ever about dementia. But few prove as helpful and practical for those who find themselves at a loss when the diagnosis is first made than Jane Mullins' Finding the Light in Dementia: A guide for Families and caregivers (DUETcare, 2017).A great way to stay connected together with your loved one living with dementia is by creating a memory box. This will help you enjoy the present by exploring meaningful objects that reflect parts of your lives. It is also a good starting point to creating yours and your care partner’s life stories (Read Finding the Light in Dementia: A Guide for Families, Friends and Caregivers for more information). Dr. Jane M. Mullins is a dementia nurse consultant who has devoted over 30 years to the study and practice of dementia care. Through listening to and supporting people and their families during and following their diagnosis in memory clinics, caring for people who have dementia in hospital and in care homes, she has helped people throughout all of the stages of their condition. When managing a Care Home, she has supported their transition from home to residential care using life stories as a guide to planning their life and care throughout their remaining years. This has included supporting their partners, families and friends. Her particular passions are finding ways to communicate with people who have dementia through music, art and nature as a way to helping them feel well and valued. I have felt personally and professionally supported by Jane when we were colleagues at Cardiff University. Jane is a very dynamic individual, who was keen to ensure students were supported to understand how best to provide empathetic care for people who are living with dementia and their families. It was a pleasure working alongside Jane in this role and I hope to collaborate with her further to promote empathy, care and compassion in dementia care. The toilet seat is a contrasting colour from the floor and walls, to help your loved one see more clearly

More Testimonials Listen to why Kimberley Littlemore, Director of eHealth Digital Media supports Finding the Light in Dementia Training for her and her parents If your loved one becomes a bit resistant to your prompts you could try and say something like “I think I need to go to the toilet before we go out, why don’t you go first?” Being a Finding the Light in Dementia Care™ trained carer means that people can be confident that they or their loved one will be cared for with dignity, understanding, empathy and compassion at all stages of their condition, and that the people who care for them are well, resilient and supported. Mullins, Jane M. Book Review: “Wandering the Wards: An Ethnography of Hospital Care and its Consequences for People Living with Dementia.” (2021): 14713012211054370. Finding the Light in Dementia Care™ will be delivered worldwide and will change the face of dementia care on a global scale. By contributing to our crowdfunder, you will automatically become a member of the Finding the Light in Dementia Care™ movement so that you are a key part of changing the face of dementia care worldwide (if you wish).

Gather props – you will probably find most things around your home, involve your care partner in collecting interesting objects. Think about sensory props such as an oily rag for a car enthusiast or the smell of sun cream lotion. Finding the Light in Dementia is created by myself, Jane M Mullins, people living with dementia, their families, caregivers and leading professionals and researchers in the field This is an excellent guide for anyone who has a family member or friend suffering with dementia. Really helpful advice & explanations on why certain behaviours happen & how to deal / cope with them. The best bit about this book is it is easy to read – short chapters & clearly written with very little jargon, so it is very accessible. It’s also helpful to have sections for making notes about your own circumstances, the idea being that you have the day to day information to take to a doctor if needed. The book takes you through from initial diagnosis all the way to making the decision to look at residential care, and it truly does “find the light” in all stages of that journey. It is reassuring for someone who has little or no experience with dementia to know that as a carer they are not alone, as quotes & comments from real life people are included throughout. It is a very positive book & has real tips & techniques for dealing with the situation of having a loved one suffering from such a cruel disease. Sandra



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